Find patient advocacy leaders by disease expertise.
Describe the advocate profile. Get leaders who shape patient-centered drug development, clinical trial design, and regulatory submissions.
3 free searches — discover 60-150 matching professionals, no signup required
Then $1 per search
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FDA now expects patient-focused drug development input. Your medical affairs team needs advocacy partners who understand both the patient experience and the regulatory landscape. The disease foundation directory lists organizations by condition, not by who actually participated in PFDD meetings.
Patient advocacy has become a strategic imperative for drug development, not a nice-to-have. But the advocates who matter most are not always the ones with the biggest conference presence. The rare disease parent who became a de facto expert on regulatory pathways, the community health organizer bridging clinical research and underserved populations, the foundation executive who contributed to clinical trial endpoint design -- their influence lives in work that conference speaker lists and industry relationship databases do not capture.
Describe the advocacy profile your program needs: disease expertise, regulatory involvement, organizational reach. CloneICP surfaces 20-50 advocates from publicly available information, including grassroots leaders and emerging voices across fragmented rare disease communities.
The advocate who changes your trial design may lead a foundation with twelve members.
What You Get
What You'll Get
Every search returns clear output in under 60 seconds.
20-50 Advocacy Leaders
Foundation directors, community organizers, and patient advocates whose disease-area expertise and organizational influence match your needs.
Match Scores
Each advocate ranked by how closely their professional profile aligns with the disease area and engagement type you described.
Why They Match
Specific signals: disease focus, organizational role, regulatory engagement, patient community connections.
CSV Export
Download your list. Share with medical affairs for compliance review and partnership planning.
How It Works
Describe Your Target
Tell us who you're looking for in plain language.
AI Finds Matches
We analyze signals and find matching professionals.
Export Results
Up to 50 matches, ready for your enrichment tool.
How This Is Different
The same advocacy contacts show up on every pharma company's list.
- Foundation directories list organizations by condition, not by leader expertise or influence
- Conference networking surfaces advocates who already have extensive industry relationships
- No way to search for advocates with specific regulatory experience or policy involvement
- Rare disease communities are fragmented across dozens of small organizations
- Describe the advocacy profile in terms of disease expertise, regulatory involvement, and organizational role
- Find grassroots community leaders and emerging advocates, not just established foundation heads
- Results based on publicly available professional and organizational information
- Discover advocates across fragmented rare disease communities in a single search
Questions